Friday, December 30, 2011
HE STILL HASN'T LOST HIS HAIR!
Blair's ANC is 9 so slowly but surely his counts are getting wiped out but this is however what we want. He has 7 days to go so keep praying. Another unique thing is Blair still has most of his hair. It's thinned a lot but from the naked eye it's hardly noticable. Blair's been a miracle since the beginning it wouldn't suprise me if the Lord let him keep something as simple yet significant as his hair. We just have to wait and see. The way I look at it is he has been through two rounds and has three to go the longer he keeps his hair the better. If it falls out it falls out but he gives the doctors something to talk about because it's unusual. Blair's our little miracle Thank you God for all the blessings we've received in a time like this.
Thursday, December 29, 2011
DOING GOOD!
Today his ANC is 30, the doctor said she is really happy with how he is doing. The previous round of chemo Blair had he had already had mouth sores at this time. As of yet he has none this is awesome! He has about 8 more days so keep praying it's working.
Wednesday, December 28, 2011
SAME OLD
Today Blair's ANC is 53 so he is almost to zero which is good and bad. Right now the big concern is him getting a fever or infection. He still has a lot of energy and doesn't seem at all sick however this could change instantly so everyone just keep praying for no fever or infection. He has nine more days until his counts will come back.
Tuesday, December 27, 2011
COUNTS ARE CONTINUALLY DROPPING!
Today Blair's ANC is 172 and his WBC is still quite high. I guess this is good that he still has a lot of white cells, were looking at his ANC now this has to get low for Blair's leukemia to be eradicated. So continue to pray for no fevers. He needed a platelet transfusion today and eventually he'll need red blood cells. But all in all he's doing good.
Monday, December 26, 2011
LOCK DOWN!
Blair's ANC is 335 which means he is offically neutropenic (low infection fighting cells). So he has to stay in his room all day except late at night when there isn't too much traffic on our floor. The child life program here did work it out that he can play a video game an hour a day so this is huge for us. We should start to see his counts come back in about 11 days!
Me and Blair last night he's playing with my hair like usual. His Aunt Julianne took this picture, my husbands family came yesterday and stayed six hours. Blair and Phoenix had a blast! It was a truly fun christmas and we thank God that Blair was healthy and energetic to enjoy a special day.
PRAY FOR NO FEVERS!
Me and Blair last night he's playing with my hair like usual. His Aunt Julianne took this picture, my husbands family came yesterday and stayed six hours. Blair and Phoenix had a blast! It was a truly fun christmas and we thank God that Blair was healthy and energetic to enjoy a special day.
PRAY FOR NO FEVERS!
Sunday, December 25, 2011
GOOD NEWS!
Blair's current doctor told us that he would have been suprised if Blair was in remission after the first month. So apparently doctor's don't agree on everything however I've come to respect this particular doctor because he doesn't sugar coat things. He gives you straight facts. He also said no two leukemia patients are the same. With that said It's my opinion that things change so often that it's hard to say one certain thing and set it in stone. I'll try to keep everyone updated as best I can but as you've previously read none of us are really sure. He's doing great and the medicine is working this is certain!
MERRY CHRISTMAS EVERYONE!
This is my kids christmas moring!
This is my kids all dressed up in their christmas best! Phoenix is coming today so obviously the kids are excited and Blair's ANC is 532 this morning which he is a borderline neutropenic. This means God answered prayer and Blair's healthy enough today to enjoy christmas! Thank God.
I hope everyone has a Merry Christmas we sure will.
This is my kids all dressed up in their christmas best! Phoenix is coming today so obviously the kids are excited and Blair's ANC is 532 this morning which he is a borderline neutropenic. This means God answered prayer and Blair's healthy enough today to enjoy christmas! Thank God.
I hope everyone has a Merry Christmas we sure will.
Saturday, December 24, 2011
VISITORS TODAY!
It's Christmas Eve night and my brother Scott and his wife Ashley came to visit us with their kids Emma and Brenden. In the photo below Emma who is wearing a cancer cap was putting slippers on Hannahleah and Brenden is in the background be a normal busy one year old. Ashley brought presents and lots of snacks! We had a good time it was so nice to see familiar faces. We love you guys!
Meanwhile Blair was in the playroom playing Batman Lego game on PS2 with his dad. He's played that game for hours and believe it or not he tricked me into playing for two hours with him! What does he think he's sick or something?
Meanwhile Blair was in the playroom playing Batman Lego game on PS2 with his dad. He's played that game for hours and believe it or not he tricked me into playing for two hours with him! What does he think he's sick or something?
ANOTHER PARTY!
A party was hosted today by two families that had children who previously had cancer. They had gifts for the children, siblings and parents. Pizza and pop was the meal followed by tons of candy. It truly was an amazing day and Ryan picked out a Michigan hat for Blair he looks so cute!
Friday, December 23, 2011
MOVING DAY!
Today is the day we move from room 905 to room 913. This is to keep the germs from attacking our little soldier.
Lord willing his counts will hold steady until Monday as we are expecting visitors on Christmas!
Lord willing his counts will hold steady until Monday as we are expecting visitors on Christmas!
Thursday, December 22, 2011
ISOLATION!
Well I found out today that there moving Blair to the other side of the floor because he has to stay in isolation. This has nothing to do with his counts as of yet because there still really good. The type of chemo he received this past week is really strong so his counts will crash to nothing. Isolation protects him from getting sick from vistors and other people that stroll the floor. I know it sounds kind of scary but this is what we want, we want his counts to be eradicated taking the remainder leukemia cells with it. So this time next month Lord willing he will be cancer free.
Keep praying and special thanks to Blair's school Daystar Christian Academy they have gone above and beyond to spread news about Blair and to shower him with gifts and cards. Thank you all so much I am glad Blair got to attend this year and am looking forward to his return next fall.
Keep praying and special thanks to Blair's school Daystar Christian Academy they have gone above and beyond to spread news about Blair and to shower him with gifts and cards. Thank you all so much I am glad Blair got to attend this year and am looking forward to his return next fall.
Wednesday, December 21, 2011
HANNAHLEAH WAS BELL OF THE BALL!
It seemed Hannahleah attracted a lot of attention today wearing her pink tutu! The photographer took plenty of pictures of my kids and we had a lot of fun. The photographer also took pictures of me talking with Helen Devos so that was kind of neat. The Devos granddaughters loved Hannahleah so the day was truly exciting. To check out the pics go to the Helen Devos webpage or facebook in a couple of days.
Thank God for such a fun and exciting day!
Thank God for such a fun and exciting day!
IT'S PARTY TIME!
Today Blair, Hannahleah and I get to attend a hospital party on the 1st floor that features Helen Devos herself. Because Blair's counts are so good he not only gets to attend but he doesn't have to be hooked up to his IV pole. The reason today is so important is because Blair's counts will begin to fall significantly this weekend. He'll be more and likely sick for christmas so today is a christmas party that he can attend with us and have fun before the counts drop.
Praise God for sweet miracles that encourage us for the long road ahead.
Praise God for sweet miracles that encourage us for the long road ahead.
Tuesday, December 20, 2011
NOTHING NEW!
It's the same old today. Blair is still doing really well he loves playing Indiana Jones video game. I had to quickly steal away to get lunch because he doesn't want to leave his beloved game. So that gives you an idea of how he is doing.
Continue to pray for REMISSION that is still the goal for next month!
Continue to pray for REMISSION that is still the goal for next month!
Monday, December 19, 2011
Sunday, December 18, 2011
THREE DAYS OF CHEMO AND HE'S NOT SICK!
Blair is getting High Dose AraC chemo and so far he's doing great. All day today he's been walking the halls taking pictures of everybody with mine and Ryan's phone. He eats like there will be a great famine soon, and loves to torture his sister. However they have their sweeter moments, below is Blair and Hannahleah sleeping last night in Blair's bed.
Pray for me because I have a terrible cold and it goes without saying that a kid on chemo and colds don't mix. I recently had a sinus infection so Lord willing it's not that. Also keep praying for Blair the next battle is that this stronger round of chemo will kill any last survivors. Throughout the research I have done I've discovered that just the fact that Blair didn't have cranial bleeding intially is a miracle. So keep encouraged, he's still here and strong and I thank God.
Pray for me because I have a terrible cold and it goes without saying that a kid on chemo and colds don't mix. I recently had a sinus infection so Lord willing it's not that. Also keep praying for Blair the next battle is that this stronger round of chemo will kill any last survivors. Throughout the research I have done I've discovered that just the fact that Blair didn't have cranial bleeding intially is a miracle. So keep encouraged, he's still here and strong and I thank God.
Friday, December 16, 2011
CONFUSION
I decided to clarify a few things about Blair and remission. We learned today that usually with APL patients they get a bone marrow biopsy at diagnosis to see what percent the leukemia is at. Because Blair was too sick they opted to wait until his counts were better. If he would have had the biopsy at the beginning he wouldn't have gotten another one for three months, this is when we know if he truly is in remission. So his schedule was a little mixed up. I hope this clears things up for everyone!
I found this picture of our little champion on the internet. He won 1st Place at the Pedal Pull in Cadillac this past summer.
I found this picture of our little champion on the internet. He won 1st Place at the Pedal Pull in Cadillac this past summer.
WERE BACK!
Today we arrived back at the hospital for our second round of chemo and we'll be here about a month. Blair is still doing good but isn't in remission yet. The doctor said with Blair's type of leukemia it takes about three months for them to be in remission. However one test showed Blair had no leukemia left and another showed about 16% potential leukemia cells, so coming from 80-90% leukemia to 16% shows he is moving in the right direction.
Keep praying for Blair but also thank God because he's doing great!
Keep praying for Blair but also thank God because he's doing great!
Tuesday, December 13, 2011
NO RESULTS TODAY!
Blair's platelets are 353,000 today, his hemoglobin is 10.9 and WBC is 3,325.00. The results for his bone biopsy won't come in for a couple of days. However the doctor told us this morning that he has never treated a patient with counts as high as Blair's that wasn't in remission. So that of course is encouraging.
Keep praying it's obvious it's working.
Keep praying it's obvious it's working.
Friday, December 9, 2011
GOING HOME!
The day has arrived we are going home today! We will be returning Tuesday for his bone marrow biopsy but if no fever we will stay home until next Friday. I obviously won't be posting for the next few days as there won't be anything eventful to update everyone about. So Tuesday I'll post the results of his bone marrow.
Thanks everyone for the constant pray we all appreciate it!
Thanks everyone for the constant pray we all appreciate it!
Thursday, December 8, 2011
AWWWW!
Blair and Hannahleah get cuddly on Blair's bed this moring. Blair's platelets are up to 100,000 and he continues to thrive. The doctor said we can go home tomorrow if Blair doesn't get a fever, we expect he won't. So just continue to pray that Blair does well because when we go home tomorrow we get a week to be home before admission next Friday.
Wednesday, December 7, 2011
81,000
Blair's platelets are 81,000 today and his WBC is 2,800. This is huge for him, tomorrow or Friday is possibly the day we go home before chemo next Friday. Keep praying because Tuesday we find out if he is in remission. Also Kadynce gets chemo today so remember her.
Thanks so much everyone!
Thanks so much everyone!
Tuesday, December 6, 2011
Kadynce
Pray for a little girl we met named Kadynce! She has neuroblastoma and is considered high-risk. Again I count my many many blessings! God has shielded our family from so much
Blair's Airplane!
Last night and today Blair has been working on this massive airplane. He and I built some paper airplanes and then he taped them all together. The nurses have been chuckling because he has went through just about two rolls of tape and has been occupied for hours! Hey what ever makes him happy right?
STILL ON THE RIGHT TRACK!
His hemoglobin is 9.2 and his platelets are 52,000. So he still continues to improve everyday. This is a positive sign his bone marrow is working properly. However his ANC has to get to 500 before we go home. Pray his ANC jumps to where it needs to be because it has gone down again, which is expected but anyhow pray it continues to climb like his hemglobin and platelets.
Monday, December 5, 2011
His Plate Chips Keep Growing!
When Blair was first diagnosed he called platelets "plate chips" so now we like to joke about it! His platelets went from 29,000 yesterday to 39,000 today ON HIS OWN! So we are hoping to be home this week for a few day reprieve Lord willing.
Continue to pray for Blair's counts to keep going up!
Continue to pray for Blair's counts to keep going up!
Sunday, December 4, 2011
He keeps Improving!
Today his platelets went up on their own and his hemoglobin. Since Blair was diagnosed he constantly needed transfusions because he didn't make his own blood cells. Thank God he's beginning to be like everyone else.
KEEP UP THE PRAYER!
KEEP UP THE PRAYER!
Saturday, December 3, 2011
IT'S A MIRACLE!
Blair's ANC is 494 today. It went from 14 two days ago to 494. PRAYER CHANGES THINGS!
Thanks again everyone who puts Blair in their prayers I think words do little to describe my appreciation.
Thanks Jessica Baum for spreading the word about Blair because Brenda from LLS visited us bearing gifts!
The kids loved it!
Thanks again everyone who puts Blair in their prayers I think words do little to describe my appreciation.
Thanks Jessica Baum for spreading the word about Blair because Brenda from LLS visited us bearing gifts!
The kids loved it!
Friday, December 2, 2011
Praise God!
Blairs ANC jumped from 14 yesterday to 186 today, and although thats still low that is much better than he has been since he was diagnosed. Thank you Jesus! Thank you Jesus! I really feel prayer changed his counts so dramatically overnight and all I can say is that I appreciate all the prayer from everyone.
Special thanks to Blair's Aunt Ingrid for the the Super Kid pin Blair loves and also to Sally are dear friend from our insurance company the money is very appreciated. Lastly Thanks to my sister-in-law Ashley she made two wonderful cakes for my children and I'm truly thankful.
Special thanks to Blair's Aunt Ingrid for the the Super Kid pin Blair loves and also to Sally are dear friend from our insurance company the money is very appreciated. Lastly Thanks to my sister-in-law Ashley she made two wonderful cakes for my children and I'm truly thankful.
Thursday, December 1, 2011
Not So Good Today.
Blairs counts aren't doing so good and he has an infection in his stool. So the big prayer request is that Blair is in remission because he is still at risk for more infection. It looks like we are not going home before his next chemo due to his recent infection. His chemo is scheduled for Dec 13 and he has to stay in the hospital for another twelve days at least.
Keep praying we appreciate it. all I can say is it could be far worse. We are thankful that he is successfully through his first and most riskest chemo.
Keep praying we appreciate it. all I can say is it could be far worse. We are thankful that he is successfully through his first and most riskest chemo.
Wednesday, November 30, 2011
Happy 5th Birthday Blair!
Today Blair's counts are higher what a perfect birthday present. However with chemo it will be up one day and down the next. The doctor said he is doing good and has a really good chance at being in remission in the middle of December. So our prayer request is that everyone would pray Blair gets into remission so the rest of his journey won't be so intense.
Thanks so much everyone for all the support and a special thank you to Blair's teacher Mrs. Brenda who sent him a race car track for his birthday. He loved it!!
Thanks so much everyone for all the support and a special thank you to Blair's teacher Mrs. Brenda who sent him a race car track for his birthday. He loved it!!
Tuesday, November 29, 2011
Tuesday!
Today Blair is doing ok but due to his mouth sores its been a struggle getting him to eat! His counts are really low today which again goes along with chemo. He has a fever but a low grade one. He's excited about his birthday tomorrow and his Ben 10 cake. Considering his counts are so low Blair, Thank God is doing quite well he still manages to boss me around ha! ha!
Keep up the prayers we can feel them
Keep up the prayers we can feel them
Monday, November 28, 2011
Monday!
Blair is doing a lot better he has no more fevers. His counts went up today which is really good. Blair's birthday is Wednesday so it looks like a hospital party but with kids so long as there are toys they don't care.
We have a lot to be thankful and hopeful for, in six months this Lord willing will be all behind us. I thank God Blair is doing so good, with what I have seen in this hospital we are the blessed ones.
Thanks, and continue to pray Blair and I would appreciate it.
We have a lot to be thankful and hopeful for, in six months this Lord willing will be all behind us. I thank God Blair is doing so good, with what I have seen in this hospital we are the blessed ones.
Thanks, and continue to pray Blair and I would appreciate it.
Saturday, November 26, 2011
Back Again!
Well we went home for a few hours on Friday and then Blair got a low grade fever so back to the hospital we went. Nothing serious just a victim of a low wbc. So were hanging in there and were glad he's still doing fine. Today when laying in his bed a poem from God came to me this is what it is.
Leukemia of course is death
poor kids this world they left
were so sorry to tell you
but your son Blair has it too
what this cant be
not to him, not to me
but yes God allowed this
Blair needs blood give him a kiss
Oh please God your will be done
Please see fit to save my son
But if not I"ll understand
souls come first not after man
but please however you decide
be our comfort, constant guide
help me to grow spiritually
so when this is over good do i see
i love You Lord through this all
Your my Master on You i call
the wars not over the battle just begun
please in Your mercy save my dear son.
From, Amanda
Leukemia of course is death
poor kids this world they left
were so sorry to tell you
but your son Blair has it too
what this cant be
not to him, not to me
but yes God allowed this
Blair needs blood give him a kiss
Oh please God your will be done
Please see fit to save my son
But if not I"ll understand
souls come first not after man
but please however you decide
be our comfort, constant guide
help me to grow spiritually
so when this is over good do i see
i love You Lord through this all
Your my Master on You i call
the wars not over the battle just begun
please in Your mercy save my dear son.
From, Amanda
Thursday, November 24, 2011
Happy Thanksgiving Everyone!
Today Blair is doing great he is no longer hooked up to an IV so as you can imagine he is running around playing and the sort. His counts are still holding steady and today we have a lot to be thankful for. What I am thankful for is my loving and supportive family and neighbors, its because of you that this ordeal doesn't seem so bad. Also I am thankful that God is seeing fit to heal my son to Him be the glory. So as of right now tomorrow is still the day we can go home!
Thanks and God Bless
Thanks and God Bless
Wednesday, November 23, 2011
Daily Update
Today the Doctor said that Blair's blood counts are good. He has no more leukemia blasts in his blood and it looks like we might come home on Friday Lord willing. Blair loves to play batman the lego game on PS2 and draw pictures of his family. Thanks so much to everyone supporting us. Words can't describe our gratitude!
Thanks again and God Bless!
Thanks again and God Bless!
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