Blair is sooo cute! He's been walking around the yard with his baseball cap on, to cover his bald head, and his beebe gun shooting boxes with his dad. He looks like Elmer Fud. We are truly excited to be home.
What Can we do without God?
How can I breathe in and out?
How can I laugh, cry, scream and shout?
How can I see the big green trees
pick the beautiful flowers, hear the buzzing bees?
How can I go from here to there
do the laundry, brush my hair?
How can I get through a tiring day
when there's still work to do, bills to pay?
It's easy to forget Who holds the key
Who's really in charge of both you and me
Whether sinner or saint
God has your number no matter what picture you paint
So before you put on your shoes for the day
Take a moment to stop and pray
Remember the reason why you can
Breathe in and out again and again
Friday, March 23, 2012
Tuesday, March 20, 2012
GOING HOME!
Everything looks good. Blair's ANC is 117 so because it's going up we get to go home. I am so excited, I was jumping up and down thanking God for a smooth month. We go back Tuesday for a bone marrow to make sure it's still gone.
Monday, March 19, 2012
THANK YOU JESUS! THANK YOU JESUS!
Blair's ANC was 64 this morning and his platelets went up on his own. This means he is coming back nicely. In fact they said he could go home TOMORROW! Considering nothing happens we are free to go. I can't even begin to express how thankful I am that God put us under HIS thumb. Blair didn't get CDIF, he didn't die of infection. So many things could have happened but they didn't. I don't deserve how much I've been blessed but I will forever be grateful and thank you all for praying continuously for my son. There is power in prayer and I appreciate all the effort you've put in to remembering him. THANK YOU! THANK YOU!
Sunday, March 18, 2012
HE'S COMING BACK!
Blair's white blood count went up quite a bit today. His platelets held steady which means we should be able to go home Lord willing in the middle of the week. Keep praying but so far the Lord has seen fit to allow Blair to sail through this round.
Friday, March 16, 2012
ANC IS STILL 0!
Blair's counts haven't moved much so were still waiting. He's eating a lot better and his over all attitude is really good. He plays and moves around a lot. The only thing telling us his counts are low is his numbers his energy shows no such thing.
Thursday, March 15, 2012
FAITH!
We made it through the storm we were in
The battle is over, outcomes a win
Many emotions we had while here
Sadness and sorrow, anxiety and fear
Whatever happened was for the best
Our faith was tried, put to the test
I'll never regret this journey we've had
All we have been through the good and the bad
It's made me a better Christian for sure
My heart is more open, feelings more pure
God is the Master and I am the clay
Thank You for molding me is this unique way.
The battle is over, outcomes a win
Many emotions we had while here
Sadness and sorrow, anxiety and fear
Whatever happened was for the best
Our faith was tried, put to the test
I'll never regret this journey we've had
All we have been through the good and the bad
It's made me a better Christian for sure
My heart is more open, feelings more pure
God is the Master and I am the clay
Thank You for molding me is this unique way.
Wednesday, March 14, 2012
STILL 0!
Blair's ANC is still 0 but he hasn't had a fever since the first one he got. He is up and playing but he just will not eat. Pray that his counts start to recover soon and that he doesn't get CDIF. CDIF happens when they have no counts and are on antibiotics. He had a bowel movement today and it was normal so for now he's good.
Tuesday, March 13, 2012
FEVER!
I was so weak today
I wanted to leave but had to stay
Blair had a fever that needed a poke
The burden was heavy along with the yoke
He screamed so loud, "Don't touch me."
It's for the best just wait you'll see
My heart faltered as they held him down
I attempted to smile rather than frown
Please God get me through
I can do nothing it's up to You
The needle went in without a flinch
Blair your done what a cinch
I had borrowed trouble that wasn't there
My Saviour new what I could and couldn't bear
Thank You God for saving me
from so much pain and misery
It' been a difficult road I'll admit that's true
But God and only God is the One who will see me through
I wanted to leave but had to stay
Blair had a fever that needed a poke
The burden was heavy along with the yoke
He screamed so loud, "Don't touch me."
It's for the best just wait you'll see
My heart faltered as they held him down
I attempted to smile rather than frown
Please God get me through
I can do nothing it's up to You
The needle went in without a flinch
Blair your done what a cinch
I had borrowed trouble that wasn't there
My Saviour new what I could and couldn't bear
Thank You God for saving me
from so much pain and misery
It' been a difficult road I'll admit that's true
But God and only God is the One who will see me through
Monday, March 12, 2012
ANC IS 0!
Blair's ANC is still 0 it was 0 yesterday also. The PA told us this morning that he is impressed Blair had an ANC of 0 and didn't get a fever. It's obvious Who is responsible for such an outcome.
This morning Hannahleah and I went to take a shower and on our way out of Blair's room we heard a siren going off. Three doors down a child was having problems and doctors were everywhere. Nurses were running it was crazy. They ended transfering the child to a different floor so I'm not sure how he's doing. As I was praying for him I thought this could be us. Blair's room could be the one making all the noise as doctors scurry to save his life. I thanked God we haven't had this happen to us. Being here reminds you all to well what can happen and I am so THANKFUL that God has seen fit to spare my family from such grief.
Continue to pray for Blair as his counts are dangerously low. Pray for no fever but mainly no infection.
This morning Hannahleah and I went to take a shower and on our way out of Blair's room we heard a siren going off. Three doors down a child was having problems and doctors were everywhere. Nurses were running it was crazy. They ended transfering the child to a different floor so I'm not sure how he's doing. As I was praying for him I thought this could be us. Blair's room could be the one making all the noise as doctors scurry to save his life. I thanked God we haven't had this happen to us. Being here reminds you all to well what can happen and I am so THANKFUL that God has seen fit to spare my family from such grief.
Continue to pray for Blair as his counts are dangerously low. Pray for no fever but mainly no infection.
Saturday, March 10, 2012
PLATELETS!
Today Blair needed a platelet transfusion because his platelets were only 9,000. Normal platelet count is 250,000 to 500,000. His ANC is 21 so it's slowly going down. I compared his counts from the last time he got High Dose AraC and found he is doing quite similar which is good. He eats a lot and has quite a bit of energy I thank God for that.
Friday, March 9, 2012
STARTING TO DROP!
Blair's ANC is 96 this morning. I am actually pleased with how he is doing I thought for sure his ANC would be 0 and couple of days ago. Now its the waiting game for his counts to hit rock bottom and then climb again. Blairs eyes are doing so much better thank God. Ryan and Hannahleah came last night so we had a slumber party in Blair's room it was really fun! Thank you everyone for praying for Blair I can't describe how thankful I am to have so much support.
Thursday, March 8, 2012
A BETTER DAY!
The eye specialist came and looked at Blair's eyes this evening. After the initial trauma of getting him to put the numbing medicine in his eyes the doctor could finally get a good look and Blair's corneas. I thank God Ryan was there and he got to be the bad guy, all I wanted to do was cry as they held him down. But after all the struggle the doctor said that he had no damage and that his eye was severly dry and time and saline drops would heal him. I feel so blessed that it isn't worse because the doctor explained to me that the type of chemo Blair got, works its way out through secretion. Everytime Blair cried he was sloshing chemo over his eyes. It seems like God gets us out of every tough situation were in.
Wednesday, March 7, 2012
BACK TO EYE DROPS!
Blair's eyes had a late reaction to the chemo and he couldn't see at all yesterday. Any light at all sent him into a fit. I thank God because Blair slept almost the entire day. Him and I laid in complete darkness. They put him back on Prednisone drops and he could open his eyes slightly last night. Pray for a full recovering. Also the nurse said she has seen far worse so thank God he is doing good considering.
Tuesday, March 6, 2012
STILL DOING GOOD!
Blair had his party last night with the nurses and his family. He was really excited! His ANC is 1500. So far right now he can roam the halls and enjoy himself. He won't be on lock down until his ANC is less than 500. I am so happy I got to spend the night with Hannahleah it was such a treat. Thank God for another great day!
Monday, March 5, 2012
BLAIR'S OFF HIS POWER TOWER!
Today Blair got unhooked from his IV pole. As long as he stays hydrated and has no fever he can remain off of it.
Blair's dad gets to spend the night tonight so he is so excited! Yesterday a lady came to tell Blair a story about Jesus and Blair told me last night that Jesus lives in his heart. So Blair decided to have a slumber party tonight to celebrate Jesus living in his heart and his dad spending the night. Everyone on the floor is invited and he even made me do invitations. He wants a cake and we stayed up until 3 this morning decorating his room for this occasion.
Blair's dad gets to spend the night tonight so he is so excited! Yesterday a lady came to tell Blair a story about Jesus and Blair told me last night that Jesus lives in his heart. So Blair decided to have a slumber party tonight to celebrate Jesus living in his heart and his dad spending the night. Everyone on the floor is invited and he even made me do invitations. He wants a cake and we stayed up until 3 this morning decorating his room for this occasion.
Sunday, March 4, 2012
BLAIR'S PUPPY CAME FOR A VISIT!
This is Blair's puppy Boy Boy. He came for a visit today and Blair was so excited! But originally Boy Boy did NOT have his shots so in order to visit a patient they need to be on the up and up. So we had a problem and it's a weekend now what. I flipped through the phone book and called a few vets that said no they were sorry they couldn't help me. So I prayed Lord help me find someone and I called Harmony Vet in Grand Rapids and she said yes she would do it because luckily she was in the office due to sick cats she was attending. I do not for one minute believe it was luck and rejoiced that a miracle was performed for Boy Boy to get his shots and beable to visit my son. Upon hearing how I managed this a nurse exclaimed, "another miracle for the Fewless family". Thank you God so much!
Friday, March 2, 2012
END OF CHEMO PRAISE GOD!
These last four days have been really trying on me. It's painful to watch my son get poison pushed through his body for three hours straight two times a day. Then to see a rash of two bumps appear to turn into full fledged adolescent acne. All I wanted to do was hide under a bed until it was over. For someone to come get me a say you can come out now he's all done. But I can't. I am his mother, and along with that title comes the job of what many times brings joy also bears sorrow. Thank God there is a God in Heaven so I don't have to hide and I do have someone to cry to. At the time it felt like four days was forever but now it's Saturday and its over. God is so good He has shielded me from so much I will never be able to fully describe my gratitude....
I in my own strength can do nothing Lord
I found this out to be true
I in my own strength can do nothing Lord
It's You who has brought me through
I in my own strength can do nothing Lord
I'll never admit I was strong
I in my own strength can do nothing Lord
It was You holding me all along
I in my own strength can do nothing Lord
Forever is what I'll say
I in my own strength can do nothing Lord
Unless you guide my way
I in my own strength can do nothing Lord
I found this out to be true
I in my own strength can do nothing Lord
It's You who has brought me through
I in my own strength can do nothing Lord
I'll never admit I was strong
I in my own strength can do nothing Lord
It was You holding me all along
I in my own strength can do nothing Lord
Forever is what I'll say
I in my own strength can do nothing Lord
Unless you guide my way
STILL NO FEVER! THANK GOD!
Blair has two more doses of chemo to go. This is his face with a rash on it a side effect from the chemo. However he has not been sick or had a fever for this we can be grateful. Also his rash looks bad but doesn't bother him a bit. Keep praying his counts will start to fall rapidly this weekend.
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