Thursday, April 19, 2012
STILL AT HOME!
Were officially on maintenance and Blair has to take three pills a day and twelve a day once a week. He is slowly starting to get his hair back. It's growing in small tufts around his head. So far Thank God everything is going according to plan. Thanks everyone for all the praying. Continue to remember us.
Friday, March 23, 2012
HAVING A BLAST!
Blair is sooo cute! He's been walking around the yard with his baseball cap on, to cover his bald head, and his beebe gun shooting boxes with his dad. He looks like Elmer Fud. We are truly excited to be home.
What Can we do without God?
How can I breathe in and out?
How can I laugh, cry, scream and shout?
How can I see the big green trees
pick the beautiful flowers, hear the buzzing bees?
How can I go from here to there
do the laundry, brush my hair?
How can I get through a tiring day
when there's still work to do, bills to pay?
It's easy to forget Who holds the key
Who's really in charge of both you and me
Whether sinner or saint
God has your number no matter what picture you paint
So before you put on your shoes for the day
Take a moment to stop and pray
Remember the reason why you can
Breathe in and out again and again
What Can we do without God?
How can I breathe in and out?
How can I laugh, cry, scream and shout?
How can I see the big green trees
pick the beautiful flowers, hear the buzzing bees?
How can I go from here to there
do the laundry, brush my hair?
How can I get through a tiring day
when there's still work to do, bills to pay?
It's easy to forget Who holds the key
Who's really in charge of both you and me
Whether sinner or saint
God has your number no matter what picture you paint
So before you put on your shoes for the day
Take a moment to stop and pray
Remember the reason why you can
Breathe in and out again and again
Tuesday, March 20, 2012
GOING HOME!
Everything looks good. Blair's ANC is 117 so because it's going up we get to go home. I am so excited, I was jumping up and down thanking God for a smooth month. We go back Tuesday for a bone marrow to make sure it's still gone.
Monday, March 19, 2012
THANK YOU JESUS! THANK YOU JESUS!
Blair's ANC was 64 this morning and his platelets went up on his own. This means he is coming back nicely. In fact they said he could go home TOMORROW! Considering nothing happens we are free to go. I can't even begin to express how thankful I am that God put us under HIS thumb. Blair didn't get CDIF, he didn't die of infection. So many things could have happened but they didn't. I don't deserve how much I've been blessed but I will forever be grateful and thank you all for praying continuously for my son. There is power in prayer and I appreciate all the effort you've put in to remembering him. THANK YOU! THANK YOU!
Sunday, March 18, 2012
HE'S COMING BACK!
Blair's white blood count went up quite a bit today. His platelets held steady which means we should be able to go home Lord willing in the middle of the week. Keep praying but so far the Lord has seen fit to allow Blair to sail through this round.
Friday, March 16, 2012
ANC IS STILL 0!
Blair's counts haven't moved much so were still waiting. He's eating a lot better and his over all attitude is really good. He plays and moves around a lot. The only thing telling us his counts are low is his numbers his energy shows no such thing.
Thursday, March 15, 2012
FAITH!
We made it through the storm we were in
The battle is over, outcomes a win
Many emotions we had while here
Sadness and sorrow, anxiety and fear
Whatever happened was for the best
Our faith was tried, put to the test
I'll never regret this journey we've had
All we have been through the good and the bad
It's made me a better Christian for sure
My heart is more open, feelings more pure
God is the Master and I am the clay
Thank You for molding me is this unique way.
The battle is over, outcomes a win
Many emotions we had while here
Sadness and sorrow, anxiety and fear
Whatever happened was for the best
Our faith was tried, put to the test
I'll never regret this journey we've had
All we have been through the good and the bad
It's made me a better Christian for sure
My heart is more open, feelings more pure
God is the Master and I am the clay
Thank You for molding me is this unique way.
Wednesday, March 14, 2012
STILL 0!
Blair's ANC is still 0 but he hasn't had a fever since the first one he got. He is up and playing but he just will not eat. Pray that his counts start to recover soon and that he doesn't get CDIF. CDIF happens when they have no counts and are on antibiotics. He had a bowel movement today and it was normal so for now he's good.
Tuesday, March 13, 2012
FEVER!
I was so weak today
I wanted to leave but had to stay
Blair had a fever that needed a poke
The burden was heavy along with the yoke
He screamed so loud, "Don't touch me."
It's for the best just wait you'll see
My heart faltered as they held him down
I attempted to smile rather than frown
Please God get me through
I can do nothing it's up to You
The needle went in without a flinch
Blair your done what a cinch
I had borrowed trouble that wasn't there
My Saviour new what I could and couldn't bear
Thank You God for saving me
from so much pain and misery
It' been a difficult road I'll admit that's true
But God and only God is the One who will see me through
I wanted to leave but had to stay
Blair had a fever that needed a poke
The burden was heavy along with the yoke
He screamed so loud, "Don't touch me."
It's for the best just wait you'll see
My heart faltered as they held him down
I attempted to smile rather than frown
Please God get me through
I can do nothing it's up to You
The needle went in without a flinch
Blair your done what a cinch
I had borrowed trouble that wasn't there
My Saviour new what I could and couldn't bear
Thank You God for saving me
from so much pain and misery
It' been a difficult road I'll admit that's true
But God and only God is the One who will see me through
Monday, March 12, 2012
ANC IS 0!
Blair's ANC is still 0 it was 0 yesterday also. The PA told us this morning that he is impressed Blair had an ANC of 0 and didn't get a fever. It's obvious Who is responsible for such an outcome.
This morning Hannahleah and I went to take a shower and on our way out of Blair's room we heard a siren going off. Three doors down a child was having problems and doctors were everywhere. Nurses were running it was crazy. They ended transfering the child to a different floor so I'm not sure how he's doing. As I was praying for him I thought this could be us. Blair's room could be the one making all the noise as doctors scurry to save his life. I thanked God we haven't had this happen to us. Being here reminds you all to well what can happen and I am so THANKFUL that God has seen fit to spare my family from such grief.
Continue to pray for Blair as his counts are dangerously low. Pray for no fever but mainly no infection.
This morning Hannahleah and I went to take a shower and on our way out of Blair's room we heard a siren going off. Three doors down a child was having problems and doctors were everywhere. Nurses were running it was crazy. They ended transfering the child to a different floor so I'm not sure how he's doing. As I was praying for him I thought this could be us. Blair's room could be the one making all the noise as doctors scurry to save his life. I thanked God we haven't had this happen to us. Being here reminds you all to well what can happen and I am so THANKFUL that God has seen fit to spare my family from such grief.
Continue to pray for Blair as his counts are dangerously low. Pray for no fever but mainly no infection.
Saturday, March 10, 2012
PLATELETS!
Today Blair needed a platelet transfusion because his platelets were only 9,000. Normal platelet count is 250,000 to 500,000. His ANC is 21 so it's slowly going down. I compared his counts from the last time he got High Dose AraC and found he is doing quite similar which is good. He eats a lot and has quite a bit of energy I thank God for that.
Friday, March 9, 2012
STARTING TO DROP!
Blair's ANC is 96 this morning. I am actually pleased with how he is doing I thought for sure his ANC would be 0 and couple of days ago. Now its the waiting game for his counts to hit rock bottom and then climb again. Blairs eyes are doing so much better thank God. Ryan and Hannahleah came last night so we had a slumber party in Blair's room it was really fun! Thank you everyone for praying for Blair I can't describe how thankful I am to have so much support.
Thursday, March 8, 2012
A BETTER DAY!
The eye specialist came and looked at Blair's eyes this evening. After the initial trauma of getting him to put the numbing medicine in his eyes the doctor could finally get a good look and Blair's corneas. I thank God Ryan was there and he got to be the bad guy, all I wanted to do was cry as they held him down. But after all the struggle the doctor said that he had no damage and that his eye was severly dry and time and saline drops would heal him. I feel so blessed that it isn't worse because the doctor explained to me that the type of chemo Blair got, works its way out through secretion. Everytime Blair cried he was sloshing chemo over his eyes. It seems like God gets us out of every tough situation were in.
Wednesday, March 7, 2012
BACK TO EYE DROPS!
Blair's eyes had a late reaction to the chemo and he couldn't see at all yesterday. Any light at all sent him into a fit. I thank God because Blair slept almost the entire day. Him and I laid in complete darkness. They put him back on Prednisone drops and he could open his eyes slightly last night. Pray for a full recovering. Also the nurse said she has seen far worse so thank God he is doing good considering.
Tuesday, March 6, 2012
STILL DOING GOOD!
Blair had his party last night with the nurses and his family. He was really excited! His ANC is 1500. So far right now he can roam the halls and enjoy himself. He won't be on lock down until his ANC is less than 500. I am so happy I got to spend the night with Hannahleah it was such a treat. Thank God for another great day!
Monday, March 5, 2012
BLAIR'S OFF HIS POWER TOWER!
Today Blair got unhooked from his IV pole. As long as he stays hydrated and has no fever he can remain off of it.
Blair's dad gets to spend the night tonight so he is so excited! Yesterday a lady came to tell Blair a story about Jesus and Blair told me last night that Jesus lives in his heart. So Blair decided to have a slumber party tonight to celebrate Jesus living in his heart and his dad spending the night. Everyone on the floor is invited and he even made me do invitations. He wants a cake and we stayed up until 3 this morning decorating his room for this occasion.
Blair's dad gets to spend the night tonight so he is so excited! Yesterday a lady came to tell Blair a story about Jesus and Blair told me last night that Jesus lives in his heart. So Blair decided to have a slumber party tonight to celebrate Jesus living in his heart and his dad spending the night. Everyone on the floor is invited and he even made me do invitations. He wants a cake and we stayed up until 3 this morning decorating his room for this occasion.
Sunday, March 4, 2012
BLAIR'S PUPPY CAME FOR A VISIT!
This is Blair's puppy Boy Boy. He came for a visit today and Blair was so excited! But originally Boy Boy did NOT have his shots so in order to visit a patient they need to be on the up and up. So we had a problem and it's a weekend now what. I flipped through the phone book and called a few vets that said no they were sorry they couldn't help me. So I prayed Lord help me find someone and I called Harmony Vet in Grand Rapids and she said yes she would do it because luckily she was in the office due to sick cats she was attending. I do not for one minute believe it was luck and rejoiced that a miracle was performed for Boy Boy to get his shots and beable to visit my son. Upon hearing how I managed this a nurse exclaimed, "another miracle for the Fewless family". Thank you God so much!
Friday, March 2, 2012
END OF CHEMO PRAISE GOD!
These last four days have been really trying on me. It's painful to watch my son get poison pushed through his body for three hours straight two times a day. Then to see a rash of two bumps appear to turn into full fledged adolescent acne. All I wanted to do was hide under a bed until it was over. For someone to come get me a say you can come out now he's all done. But I can't. I am his mother, and along with that title comes the job of what many times brings joy also bears sorrow. Thank God there is a God in Heaven so I don't have to hide and I do have someone to cry to. At the time it felt like four days was forever but now it's Saturday and its over. God is so good He has shielded me from so much I will never be able to fully describe my gratitude....
I in my own strength can do nothing Lord
I found this out to be true
I in my own strength can do nothing Lord
It's You who has brought me through
I in my own strength can do nothing Lord
I'll never admit I was strong
I in my own strength can do nothing Lord
It was You holding me all along
I in my own strength can do nothing Lord
Forever is what I'll say
I in my own strength can do nothing Lord
Unless you guide my way
I in my own strength can do nothing Lord
I found this out to be true
I in my own strength can do nothing Lord
It's You who has brought me through
I in my own strength can do nothing Lord
I'll never admit I was strong
I in my own strength can do nothing Lord
It was You holding me all along
I in my own strength can do nothing Lord
Forever is what I'll say
I in my own strength can do nothing Lord
Unless you guide my way
STILL NO FEVER! THANK GOD!
Blair has two more doses of chemo to go. This is his face with a rash on it a side effect from the chemo. However he has not been sick or had a fever for this we can be grateful. Also his rash looks bad but doesn't bother him a bit. Keep praying his counts will start to fall rapidly this weekend.
Wednesday, February 29, 2012
EYE DROPS!
well Blair has to have eye drops put in every six hours because this chemo is known to cause terrible eye irritation. Of course this is not a pleasant thing for a five year old or his mother. However thank God he is doing really well so far. The doctor said with this type of chemo he could already have a head to toe rash and fever, along with respitory problems. So far Blair has escaped all of that save for the tiny rash on his right cheek. Keep praying because he could get really sick due to the intensity of this chemo.
Tuesday, February 28, 2012
ADMISSION!
We are here to stay for awhile he is getting his first round of chemo. His counts were great today! His ANC was over 4,000 what a wonderful way to start this last leg in our journey. Thank God for many blessings he has blessed our family.
Wednesday, February 22, 2012
STILL ON TRACK!
Blair's been dealing with a sore throat and runny nose and his ANC is only 1095 but amazingly he hasn't gotten a fever. If his ANC stays above 750 he'll still be on track for chemo and admission on the 28th. Keep praying for him because this is strong chemo and he could get really sick. I'm trusting God to bring us through, He doesn't start a miracle and not finish it.
Thursday, February 16, 2012
HE GOT A LITTLE BUG!
Blair was sick on Tuesday and we were pretty depressed. We didn't know if it was the chemo or what. But then the next day Blair was bouncing around like nothing happened. We came to the conclusion he had the 24 hour flu. I thank God he got it now rather than when his counts will be really low however I wrote this poem when he was sick and puking.
I'm so scared about Blair's fate
will the chemo work or stay and wait
to attack his body another day
these are the thoughts that won't go away
I tell the Lord oh why not me
My child suffering I can't bare to see
I'm really a coward if truth be told
It could have been worse not just a cold
He could have suffered the entire time through
instead he's an example of what God can do
He shielded us from what could have been
instead of being grateful I'm assuming its the end
the enemy has me focused on my current plight
the night before the dawn, dark before the light
But God reminds me He has a plan
My son is cupped in the palm of His hand
So you see it doesn't do to fret and worry
God wants Blair but He's not in a hurry
I'm so scared about Blair's fate
will the chemo work or stay and wait
to attack his body another day
these are the thoughts that won't go away
I tell the Lord oh why not me
My child suffering I can't bare to see
I'm really a coward if truth be told
It could have been worse not just a cold
He could have suffered the entire time through
instead he's an example of what God can do
He shielded us from what could have been
instead of being grateful I'm assuming its the end
the enemy has me focused on my current plight
the night before the dawn, dark before the light
But God reminds me He has a plan
My son is cupped in the palm of His hand
So you see it doesn't do to fret and worry
God wants Blair but He's not in a hurry
Thursday, February 9, 2012
DONE WITH THIS ROUND OF CHEMO ONE MORE TO GO!
Lord how do I express how I feel
without being dramatic making a big deal
Blair has leukemia yes we all know
But instead of getting weaker his heart began to grow
The doctor said its unusual and I'm sure thats probably true
But in Blair's case God touched him and healed him clear through
I'm amazed how good Blair's done
He loves the poke box and thinks the clinics fun
He never fusses because of early appointments
Doc says he's resilient I know it's divine anointment
I don't know when we got to this place
When all we see are miracles Gods precious grace
What I'm certain of without a doubt
is being a Christian before, during and after tragedy that's what its all about.
Blair is scheduled for his final round of chemo February 28th. This chemo will be the strongest yet so we have to get admitted that day for an entire month.
without being dramatic making a big deal
Blair has leukemia yes we all know
But instead of getting weaker his heart began to grow
The doctor said its unusual and I'm sure thats probably true
But in Blair's case God touched him and healed him clear through
I'm amazed how good Blair's done
He loves the poke box and thinks the clinics fun
He never fusses because of early appointments
Doc says he's resilient I know it's divine anointment
I don't know when we got to this place
When all we see are miracles Gods precious grace
What I'm certain of without a doubt
is being a Christian before, during and after tragedy that's what its all about.
Blair is scheduled for his final round of chemo February 28th. This chemo will be the strongest yet so we have to get admitted that day for an entire month.
Monday, February 6, 2012
UNEXPECTED!
Blair starts chemo tomorrow and finishes Wednesday. We thought it would be later in the month but because he's doing so well they changed his plan around. The chemo he's getting isn't as strong as the last one so his counts shouldn't go down too much. The doctor is trying to do this round outpatient as well so we'll just have to wait and see.
Pray for safe traveling mercies tomorrow and all goes well with chemo!
Pray for safe traveling mercies tomorrow and all goes well with chemo!
Monday, January 30, 2012
STILL AT HOME!
Today Blair went to clinic for the usual blood test and his ANC is still high and he's doing great! In fact we don't return until Friday for another check-up. I really thank God for an almost four week vacation so far it's been so fun and exhausting and the same time. It feels like normal again!
Thanks everyone for all your prayers!
Thanks everyone for all your prayers!
Saturday, January 28, 2012
Monday, January 23, 2012
STILL NO ADMISSION!
Praise God this day has come
precious anointing of my dear son
many have prayed several have wept
pleading was done promises kept
we all wanted the same thing
Blair to be healed the joy bells to ring
So when I got the call
the doc says to tell you no leukemia at all
all I could do was jump and scream
thank you Jesus as the tears did stream
I'm truly unworthy of all you do
You've lifted me up and carried me through
You took a situation that could have been bad
turned it around so blessings are had
I will never ask why he got sick
I tell him he's special specifically picked
To be an example for many to see
Prayer made the difference in the outcome for me
precious anointing of my dear son
many have prayed several have wept
pleading was done promises kept
we all wanted the same thing
Blair to be healed the joy bells to ring
So when I got the call
the doc says to tell you no leukemia at all
all I could do was jump and scream
thank you Jesus as the tears did stream
I'm truly unworthy of all you do
You've lifted me up and carried me through
You took a situation that could have been bad
turned it around so blessings are had
I will never ask why he got sick
I tell him he's special specifically picked
To be an example for many to see
Prayer made the difference in the outcome for me
Friday, January 20, 2012
THANK GOD HE'S IN REMISSION!
We found out today that 0.0% leukemia remains in his bone marrow. I jumped up and down thanking Jesus for this wonderful miracle. I am so grateful for all the prayer only God can move mountains but faith and prayer can move God!
We are still at home, tomorrow he goes for his last dose of chemo and then if his counts are high enough we can stay home until Monday if not he's admitted tomorrow. Whatever happens we don't care because we've enjoyed all the time at home we've had.
Thanks again for all the pray its been a blessing.
This was taken at Chucky Cheese Monday night before we thought we were going to be admitted. We had a lot of fun!
We are still at home, tomorrow he goes for his last dose of chemo and then if his counts are high enough we can stay home until Monday if not he's admitted tomorrow. Whatever happens we don't care because we've enjoyed all the time at home we've had.
Thanks again for all the pray its been a blessing.
This was taken at Chucky Cheese Monday night before we thought we were going to be admitted. We had a lot of fun!
Tuesday, January 17, 2012
UNEXPECTED!
We spent the night at Renucci House to be here for Blair's 8:15 a.m. admission, only to find out that Blair's counts are soooo good we can go home. His WBC was 13,000 and ANC was 11,000. Because his counts are good the doctors said he will get chemo like an outpatient so today, thursday and back for admission on Saturday. So God blessed our family with an additional four days. For this I am truly thankful.
Friday, January 13, 2012
WOW HIS COUNTS ARE THROUGH THE ROOF!
On Tuesday we found out his WBC was over 6,000 his ANC was 2,240 and his platelets were 486,000. Because his counts were so good he didn't have to go back today for another check-up. Lord willing we will enjoy our last weekend at home before it starts over again.
Thanks so much everyone for all your prayer and support. I truly feel it's made a difference in our situation.
Thanks so much everyone for all your prayer and support. I truly feel it's made a difference in our situation.
Monday, January 9, 2012
HE'S STILL DOING GREAT!
So far he has had no fever and has been playing a lot with his cousins and sister. If he continues to stay without fever we aren't due back for admission until January 17th. Then he will get his bone marrow biopsy and chemo in his spine. By the 20th of January we should know if he is in remission. So pray for remission.
Thursday, January 5, 2012
THANKFUL!
My son has leukemia and its pretty sad
But try having this with only one car to be had
To go to work all day
and back to the hospital to sleep the night away
Only to see your other kids every few weeks
Because your alone and to your family you don't speak
Or hear your child tell you they want to die
Leukemia's bad but give that a try
To stay seven months straight at the hospital
While doctors say 20% chance of survival
Theses are families I've met while here
they've touched my heart and become so dear
I know Blair's situation isn't the best
But God has shielded me from so much mess
I have a great family and a decent car
My daughter is with me never too far
I don't have to work so I can stay
and play with Blair all through the day
Thank you God for Your many blessings
I don't deserve all that you do
But I'll try my best to worship you
To show through obedience how much I care
That I'm never alone your always there
But try having this with only one car to be had
To go to work all day
and back to the hospital to sleep the night away
Only to see your other kids every few weeks
Because your alone and to your family you don't speak
Or hear your child tell you they want to die
Leukemia's bad but give that a try
To stay seven months straight at the hospital
While doctors say 20% chance of survival
Theses are families I've met while here
they've touched my heart and become so dear
I know Blair's situation isn't the best
But God has shielded me from so much mess
I have a great family and a decent car
My daughter is with me never too far
I don't have to work so I can stay
and play with Blair all through the day
Thank you God for Your many blessings
I don't deserve all that you do
But I'll try my best to worship you
To show through obedience how much I care
That I'm never alone your always there
GOING HOME!
Today we are going home! Blair's ANC is 576 and his platelets are over 200,000. Thank God for Blair's rapid recovery. We were supposed to be here for four weeks and we haven't even been here three. I am so excited! I thank God for how he has touched Blair.
Wednesday, January 4, 2012
ANC IS 470!
Yesterday his ANC was 35 today it's 470! In the world of counts everyone knows this is huge.
If this is pain I want more
anythings worth the feeling I get
when my Savior's so close tradegy I forget
I know the world wants me sad to wallow in self pity
I disappoint them by rejoicing almost gitty
I can't help but look sorrow in the face
and say I'm not alone it's part of the race
My life is shaped by Two Great Hands
I refuse to be sad at whatever he plans
It's all for my good although I can't see
I trust Him more since pain has happened to me
I know the world wants me sad to wallow in self pity
I disappoint them by rejoicing almost gitty
If this is pain I want more
anythings worth the feeling I get
when my Savior's so close tradegy I forget
I know the world wants me sad to wallow in self pity
I disappoint them by rejoicing almost gitty
I can't help but look sorrow in the face
and say I'm not alone it's part of the race
My life is shaped by Two Great Hands
I refuse to be sad at whatever he plans
It's all for my good although I can't see
I trust Him more since pain has happened to me
I know the world wants me sad to wallow in self pity
I disappoint them by rejoicing almost gitty
Tuesday, January 3, 2012
HIS ANC IS 35!
He's moving in the right direction his platlets continue to move upward on their own and his ANC went from 0 to 35 overnight. Lord willing we will be able to go home this weekend. He has 29% monocytes which mean the neutrophils aren't far behind. So I'm very happy with how he has been doing I feel like sreaming it from the rooftop "Blair's a walking miracle."
Monday, January 2, 2012
HIS PLATELETS ARE GROWING!
Blair's platelets went from 101,000 yesterday to 110,000 today. This means his bone marrow is starting to work and make his own cells. Blair still has an unusual amount of energy bowling a 259 on the wii. We have so much to be thankful for and appreciate all the prayer.
Sunday, January 1, 2012
HAPPY NEW YEAR!
Blair's ANC is a big fat 0. Lord willing he'll climb up from here. He's doing really good he ran the halls yesterday and they had a little party on the floor after the new year rang in. The four of us went blowing the silent kazoos. We had a lot of fun just being together and Blair being healthy. The doctor told us they like to see boring and in our case it's been pretty boring. As you can see he still has his hair! A nurse was commenting on him today like "wow he hasn't lost his hair".
We ring in the new year with so much hope and a lot to be thankful for. Our son has gone through two intensive rounds of chemo and is running halls, playing the wii and attacking his sister. I feel that Blair's situation has been truly miraculous. Blair himself said that he wanted to take his medicine because he wants Jesus to make him healthy. A 5 year-old knows Who holds the future and I couldn't be more proud.
Keep praying for his health and no fevers!
We ring in the new year with so much hope and a lot to be thankful for. Our son has gone through two intensive rounds of chemo and is running halls, playing the wii and attacking his sister. I feel that Blair's situation has been truly miraculous. Blair himself said that he wanted to take his medicine because he wants Jesus to make him healthy. A 5 year-old knows Who holds the future and I couldn't be more proud.
Keep praying for his health and no fevers!
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